Click here to close now.

Welcome!

Cloud Expo Authors: Carmen Gonzalez, Elizabeth White, Lori MacVittie, Mike Kavis, Plutora Blog

Related Topics: Cloud Expo

Cloud Expo: Blog Feed Post

One Year and Counting...

A blog post to mark the 365th day of survival since being operated on for pancreatic cancer

It isn't very often - no, wait, it is completely unique, having never happened before - that I write to each and every one of my LinkedIn contacts simultaneously. But as the proverb goes, "circumstances alter cases."

The "circumstance" that causes me to risk Web-wide ire at my misuse and abuse of Reid Hoffman's gallantly unspoiled business tool is the arrival of the 365th day of survival since being operated on for pancreatic cancer. One entire year! Never has a year taken so long, never have 365 days seemed more like 1,365. But a year it is, and given the givens it deserves to be marked in some way. This is my way.

Worry not, I am not going to hit you up for money. (Even though the Pancreatic Cancer Action Network could most certainly always use it.) I am not even going to hit you up for emotion.

Nope. Far worse than that, I am going to hit you up - briefly - for attention. Because, to be brutally blunt, it isn't at all clear what kind of timeline anyone lives on once pancreatic cancer rears its ugly head; and so my resolution today is to make hay while I can - or, as the Hindus apparently put it, to turn the mill while there is still sugarcane.


The chances are that you will know someone who has been diagnosed with cancer, perhaps even with pancreatic cancer. If so then, like my wife and children the day I was diagnosed in a hospital in faraway Sarajevo (pictured below), you probably headed straight to Google...and were startled by what you found.

Koševo Hospital, the university hospital of Sarajevo in Bosnia

Few diseases, I suspect, return search results quite as gloomy as pancreatic cancer. A typical one is as follows:

Pancreatic cancer has a dismal survival rate...


or this

overall survival is dismal - 20 percent after one year and only 4 percent after five years


I mean, I am no statistician, and neither were any of my four kids, but these "survival rate" stats read, back then, less like a glimpse of hope and more like a death sentence.

But then when the heck did anyone ever rely on statistics, right? Besides, what matters is how early the tumor is found (earlier = smaller = better), whether it is deemed to be operable, and how well the surgery goes. There don't seem to be any stats for those lucky enough to have undergone a Whipple operation - the life-saving, if radical, surgical procedure that, 365 days ago today, was how I spent my morning.

I have already written briefly about the experience of being both diagnosed with the deadliest of all the cancers and spared/saved from it all within the space of three weeks. I had a stab, too, at trying to sum up what it is like, after the Whipple, to be prescribed follow-up chemotherapy for seven long months. None of these posts was very well written, but the intent was just to share an experience, in case might help provide some kind of insight either to those who had worse luck than mine, perhaps even to those who fared better in similar circumstances...and most especially to the rest of you who have been lucky enough not to one day, just three months after completing your third New York Marathon, be told completely out of the blue that you've got the deadliest of all the cancers. Remember to say a brief 'thank you' tonight in your prayers!

Here's how it went down 365 days ago in Copenhagen University Hospital (Rigshospitalet), which is where I had the Whipple procedure - in which, as one fellow pancreatic survivor recently put it, "Everything around the pancreas that can be removed, cut, whacked, chopped, is."

Rigshospitalet, the university hospital of Copenhagen in Denmark

Reassured by the fact that around thirty of these operations are performed each year by this same team of surgeons, I remember one year ago today smiling first at my wife, who was right there beside me as they prepped me for the op, then at the anesthetist whose job it was to put me under...and saying a private little prayer in my head, before oblivion took over.

There's something curiously daunting about going to sleep in full possession of your innards, but with the certain prospect of waking up with your inventory of bodily organs severely depleted.

The lion's share of my pancreas, all of my gall bladder, a goodly portion of my stomach, and an assortment of small-intestine-removal later...I did indeed wake up. And what a relief it was to find that 1. I was alive and kicking and 2. that I was in no kind of pain - just "downsized" internally. In fact I was now significantly less complicated under the hood!

Departments of Surgical Gastroenterology are probably not famous for being fun places to hang out, but if you have to for one reason or another - including this Whipple operation, which is one of the most complicated they do - I can certainly recommend the incredible team at Copenhagen's Rigshospital.

Recovery from a Whipple is an especially brutal process because the basic trick is to do it just as fast as humanly possible, getting back onto one's feet almost immediately, even if only to stand up. Other tricks include repeatedly saturating one's system with oxygen via special breathing exercises that have been shown to speed up the post-operative healing process...even though the last thing you instinctively want to do, when your midriff has been more or less sliced into two, is to breathe deeply. (Trust me on this!)

365 Days Ago Today - midriff complete with mid-rift!

Whipple patients typically lose 10% of their body weight in the pre- and post-operative period. It has taken an entire year to put even half of that back on! You might think that it every teenage schoolgirl's dream, but I am no teenage schoolgirl and I can tell you, nothing is stranger than finding that none of the things you ate before are going to help you put weight back on...and that instead you have to become a fat-chaser, a scavenger on the lookout for calories wherever you can find them.

I failed miserably, for at least the first three months. Putting butter on my bread, ignoring most vegetables as having insufficient protein for the amount of room they took up in my tummy, these sorts of changes seem simple - but they are not! I adore, sorry past tense, I adored, salads. But lettuce leaves and spinach leaves and suchlike are a thing of the past, once the part of the pancreas that produces enzymes is tossed into the surgical waste-bin. Because there's nothing to help digest them...which means basically that they get stuck, and it is excruciatingly painful as well as deeply frustrating.

The pancreas is of course where your insulin is manufactured too. The after-effects of Whipple surgery differ according to how much or how little of the pancreas is left by the surgeons, but in my case all I can say is, though incredibly lucky to be left with at least a bit of it, the process of eating say an orange or a banana seems to have been undermined forever. (Guess what my two absolute favorite fruits were? I guess one should never take ANYTHING for granted. I wonder how many bananas and oranges I scoffed over the years without ever really giving it a thought; whereas now, those two tastes are almost foreign to me, I can hardly remember either of them.)

Worries over dietary changes and internal rearrangements were pushed firmly onto the back burner the day, on the very point of leaving hospital and being declared a resounding success from a surgical point of view, I was told that seven months of chemotherapy was going to be needed too. Belt and suspenders. Pancreatic cancer is like the worst kind of serial killer, and no one was intending for me to take any chances.

So I had survived the disease. Now all I needed was to survive the cure!

As I say, I already wrote about what it's like, after the Whipple, to be prescribed follow-up chemotherapy for seven long months. That was at the mid-way point. Since my 189 days of chemo ended, my overall health seems from the outside enviable - and probably is, at least to almost everyone but me, who feels it has been disappointingly slow, unexpectedly erratic, and very little different from during chemo itself. Energy levels remain fluctuating rather than steady, sleep patterns likewise, and concentration is a word that seems almost to have tumbled out of my dictionary for good.

The ugly question naturally reared itself: if the Whipple surgery went so well (and it did, the surgeons were 100% adamant about that), why wasn't I by now back to Marathon form, both professionally and personally? And the answer will come shortly...courtesy of the bloodwork and the scanning techniques that Rigshospital once again is bringing to bear on this onetime athlete's body of mine. Cross your fingers; certainly I am crossing mine on this anniversary of anniversaries. One thing is sure: it isn't for want of trying - I have been trying once more to use running as my health barometer, and really have tried again and again and again to get back my running Mojo - just as, professionally, I have sought to regain my Cloud Mojo.

But it appears that convalescence is not only a question of mind over matter. Sometimes one needs "a little help from one's friends" - including, in this case, from Copenhagen University Hospital's brilliant oncologists - who understand the nuances of X-ray computed tomography!

Once they've advised me how best to proceed from here, I shall let you know (more succinctly next time, I promise!) how the future trajectory is looking. Hopefully the current little setback will be put into context and the overall prognosis will turn out to be simply Cloudtastic ;-)

Read the original blog entry...

More Stories By Jeremy Geelan

Jeremy Geelan is Chairman & CEO of the 21st Century Internet Group, Inc. and an Executive Academy Member of the International Academy of Digital Arts & Sciences. Formerly he was President & COO at Cloud Expo, Inc. and Conference Chair of the worldwide Cloud Expo series. He appears regularly at conferences and trade shows, speaking to technology audiences across six continents. You can follow him on twitter: @jg21.

Comments (0)

Share your thoughts on this story.

Add your comment
You must be signed in to add a comment. Sign-in | Register

In accordance with our Comment Policy, we encourage comments that are on topic, relevant and to-the-point. We will remove comments that include profanity, personal attacks, racial slurs, threats of violence, or other inappropriate material that violates our Terms and Conditions, and will block users who make repeated violations. We ask all readers to expect diversity of opinion and to treat one another with dignity and respect.


@CloudExpo Stories
VictorOps is making on-call suck less with the only collaborative alert management platform on the market. With easy on-call scheduling management, a real-time incident timeline that gives you contextual relevance around your alerts and powerful reporting features that make post-mortems more effective, VictorOps helps your IT/DevOps team solve problems faster.
Skeuomorphism usually means retaining existing design cues in something new that doesn’t actually need them. However, the concept of skeuomorphism can be thought of as relating more broadly to applying existing patterns to new technologies that, in fact, cry out for new approaches. In his session at DevOps Summit, Gordon Haff, Senior Cloud Strategy Marketing and Evangelism Manager at Red Hat, will discuss why containers should be paired with new architectural practices such as microservices ra...
Roberto Medrano, Executive Vice President at SOA Software, had reached 30,000 page views on his home page - http://RobertoMedrano.SYS-CON.com/ - on the SYS-CON family of online magazines, which includes Cloud Computing Journal, Internet of Things Journal, Big Data Journal, and SOA World Magazine. He is a recognized executive in the information technology fields of SOA, internet security, governance, and compliance. He has extensive experience with both start-ups and large companies, having been ...
The industrial software market has treated data with the mentality of “collect everything now, worry about how to use it later.” We now find ourselves buried in data, with the pervasive connectivity of the (Industrial) Internet of Things only piling on more numbers. There’s too much data and not enough information. In his session at @ThingsExpo, Bob Gates, Global Marketing Director, GE’s Intelligent Platforms business, to discuss how realizing the power of IoT, software developers are now focu...
Operational Hadoop and the Lambda Architecture for Streaming Data Apache Hadoop is emerging as a distributed platform for handling large and fast incoming streams of data. Predictive maintenance, supply chain optimization, and Internet-of-Things analysis are examples where Hadoop provides the scalable storage, processing, and analytics platform to gain meaningful insights from granular data that is typically only valuable from a large-scale, aggregate view. One architecture useful for capturing...
SYS-CON Events announced today that Vitria Technology, Inc. will exhibit at SYS-CON’s @ThingsExpo, which will take place on June 9-11, 2015, at the Javits Center in New York City, NY. Vitria will showcase the company’s new IoT Analytics Platform through live demonstrations at booth #330. Vitria’s IoT Analytics Platform, fully integrated and powered by an operational intelligence engine, enables customers to rapidly build and operationalize advanced analytics to deliver timely business outcomes ...
DevOps is about increasing efficiency, but nothing is more inefficient than building the same application twice. However, this is a routine occurrence with enterprise applications that need both a rich desktop web interface and strong mobile support. With recent technological advances from Isomorphic Software and others, it is now feasible to create a rich desktop and tuned mobile experience with a single codebase, without compromising performance or usability.
SYS-CON Events announced today Arista Networks will exhibit at SYS-CON's DevOps Summit 2015 New York, which will take place June 9-11, 2015, at the Javits Center in New York City, NY. Arista Networks was founded to deliver software-driven cloud networking solutions for large data center and computing environments. Arista’s award-winning 10/40/100GbE switches redefine scalability, robustness, and price-performance, with over 3,000 customers and more than three million cloud networking ports depl...
The speed of software changes in growing and large scale rapid-paced DevOps environments presents a challenge for continuous testing. Many organizations struggle to get this right. Practices that work for small scale continuous testing may not be sufficient as the requirements grow. In his session at DevOps Summit, Marc Hornbeek, Sr. Solutions Architect of DevOps continuous test solutions at Spirent Communications, will explain the best practices of continuous testing at high scale, which is r...
Thanks to Docker, it becomes very easy to leverage containers to build, ship, and run any Linux application on any kind of infrastructure. Docker is particularly helpful for microservice architectures because their successful implementation relies on a fast, efficient deployment mechanism – which is precisely one of the features of Docker. Microservice architectures are therefore becoming more popular, and are increasingly seen as an interesting option even for smaller projects, instead of bein...
Security can create serious friction for DevOps processes. We've come up with an approach to alleviate the friction and provide security value to DevOps teams. In her session at DevOps Summit, Shannon Lietz, Senior Manager of DevSecOps at Intuit, will discuss how DevSecOps got started and how it has evolved. Shannon Lietz has over two decades of experience pursuing next generation security solutions. She is currently the DevSecOps Leader for Intuit where she is responsible for setting and driv...
The explosion of connected devices / sensors is creating an ever-expanding set of new and valuable data. In parallel the emerging capability of Big Data technologies to store, access, analyze, and react to this data is producing changes in business models under the umbrella of the Internet of Things (IoT). In particular within the Insurance industry, IoT appears positioned to enable deep changes by altering relationships between insurers, distributors, and the insured. In his session at @Things...
SYS-CON Events announced today that Open Data Centers (ODC), a carrier-neutral colocation provider, will exhibit at SYS-CON's 16th International Cloud Expo®, which will take place June 9-11, 2015, at the Javits Center in New York City, NY. Open Data Centers is a carrier-neutral data center operator in New Jersey and New York City offering alternative connectivity options for carriers, service providers and enterprise customers.
In his session at DevOps Summit, Tapabrata Pal, Director of Enterprise Architecture at Capital One, will tell a story about how Capital One has embraced Agile and DevOps Security practices across the Enterprise – driven by Enterprise Architecture; bringing in Development, Operations and Information Security organizations together. Capital Ones DevOpsSec practice is based upon three "pillars" – Shift-Left, Automate Everything, Dashboard Everything. Within about three years, from 100% waterfall, C...
Even as cloud and managed services grow increasingly central to business strategy and performance, challenges remain. The biggest sticking point for companies seeking to capitalize on the cloud is data security. Keeping data safe is an issue in any computing environment, and it has been a focus since the earliest days of the cloud revolution. Understandably so: a lot can go wrong when you allow valuable information to live outside the firewall. Recent revelations about government snooping, along...
PubNub on Monday has announced that it is partnering with IBM to bring its sophisticated real-time data streaming and messaging capabilities to Bluemix, IBM’s cloud development platform. “Today’s app and connected devices require an always-on connection, but building a secure, scalable solution from the ground up is time consuming, resource intensive, and error-prone,” said Todd Greene, CEO of PubNub. “PubNub enables web, mobile and IoT developers building apps on IBM Bluemix to quickly add sc...
Data-intensive companies that strive to gain insights from data using Big Data analytics tools can gain tremendous competitive advantage by deploying data-centric storage. Organizations generate large volumes of data, the vast majority of which is unstructured. As the volume and velocity of this unstructured data increases, the costs, risks and usability challenges associated with managing the unstructured data (regardless of file type, size or device) increases simultaneously, including end-to-...
The excitement around the possibilities enabled by Big Data is being tempered by the daunting task of feeding the analytics engines with high quality data on a continuous basis. As the once distinct fields of data integration and data management increasingly converge, cloud-based data solutions providers have emerged that can buffer your organization from the complexities of this continuous data cleansing and management so that you’re free to focus on the end goal: actionable insight.
Between the compelling mockups and specs produced by your analysts and designers, and the resulting application built by your developers, there is a gulf where projects fail, costs spiral out of control, and applications fall short of requirements. In his session at DevOps Summit, Charles Kendrick, CTO and Chief Architect at Isomorphic Software, will present a new approach where business and development users collaborate – each using tools appropriate to their goals and expertise – to build mo...
The Internet of Things (IoT) is causing data centers to become radically decentralized and atomized within a new paradigm known as “fog computing.” To support IoT applications, such as connected cars and smart grids, data centers' core functions will be decentralized out to the network's edges and endpoints (aka “fogs”). As this trend takes hold, Big Data analytics platforms will focus on high-volume log analysis (aka “logs”) and rely heavily on cognitive-computing algorithms (aka “cogs”) to mak...