Click here to close now.

Welcome!

Cloud Expo Authors: Dan Ristic, Roger Strukhoff, Liz McMillan, Elizabeth White, Kevin Benedict

Related Topics: Cloud Expo

Cloud Expo: Blog Feed Post

One Year and Counting...

A blog post to mark the 365th day of survival since being operated on for pancreatic cancer

It isn't very often - no, wait, it is completely unique, having never happened before - that I write to each and every one of my LinkedIn contacts simultaneously. But as the proverb goes, "circumstances alter cases."

The "circumstance" that causes me to risk Web-wide ire at my misuse and abuse of Reid Hoffman's gallantly unspoiled business tool is the arrival of the 365th day of survival since being operated on for pancreatic cancer. One entire year! Never has a year taken so long, never have 365 days seemed more like 1,365. But a year it is, and given the givens it deserves to be marked in some way. This is my way.

Worry not, I am not going to hit you up for money. (Even though the Pancreatic Cancer Action Network could most certainly always use it.) I am not even going to hit you up for emotion.

Nope. Far worse than that, I am going to hit you up - briefly - for attention. Because, to be brutally blunt, it isn't at all clear what kind of timeline anyone lives on once pancreatic cancer rears its ugly head; and so my resolution today is to make hay while I can - or, as the Hindus apparently put it, to turn the mill while there is still sugarcane.


The chances are that you will know someone who has been diagnosed with cancer, perhaps even with pancreatic cancer. If so then, like my wife and children the day I was diagnosed in a hospital in faraway Sarajevo (pictured below), you probably headed straight to Google...and were startled by what you found.

Koševo Hospital, the university hospital of Sarajevo in Bosnia

Few diseases, I suspect, return search results quite as gloomy as pancreatic cancer. A typical one is as follows:

Pancreatic cancer has a dismal survival rate...


or this

overall survival is dismal - 20 percent after one year and only 4 percent after five years


I mean, I am no statistician, and neither were any of my four kids, but these "survival rate" stats read, back then, less like a glimpse of hope and more like a death sentence.

But then when the heck did anyone ever rely on statistics, right? Besides, what matters is how early the tumor is found (earlier = smaller = better), whether it is deemed to be operable, and how well the surgery goes. There don't seem to be any stats for those lucky enough to have undergone a Whipple operation - the life-saving, if radical, surgical procedure that, 365 days ago today, was how I spent my morning.

I have already written briefly about the experience of being both diagnosed with the deadliest of all the cancers and spared/saved from it all within the space of three weeks. I had a stab, too, at trying to sum up what it is like, after the Whipple, to be prescribed follow-up chemotherapy for seven long months. None of these posts was very well written, but the intent was just to share an experience, in case might help provide some kind of insight either to those who had worse luck than mine, perhaps even to those who fared better in similar circumstances...and most especially to the rest of you who have been lucky enough not to one day, just three months after completing your third New York Marathon, be told completely out of the blue that you've got the deadliest of all the cancers. Remember to say a brief 'thank you' tonight in your prayers!

Here's how it went down 365 days ago in Copenhagen University Hospital (Rigshospitalet), which is where I had the Whipple procedure - in which, as one fellow pancreatic survivor recently put it, "Everything around the pancreas that can be removed, cut, whacked, chopped, is."

Rigshospitalet, the university hospital of Copenhagen in Denmark

Reassured by the fact that around thirty of these operations are performed each year by this same team of surgeons, I remember one year ago today smiling first at my wife, who was right there beside me as they prepped me for the op, then at the anesthetist whose job it was to put me under...and saying a private little prayer in my head, before oblivion took over.

There's something curiously daunting about going to sleep in full possession of your innards, but with the certain prospect of waking up with your inventory of bodily organs severely depleted.

The lion's share of my pancreas, all of my gall bladder, a goodly portion of my stomach, and an assortment of small-intestine-removal later...I did indeed wake up. And what a relief it was to find that 1. I was alive and kicking and 2. that I was in no kind of pain - just "downsized" internally. In fact I was now significantly less complicated under the hood!

Departments of Surgical Gastroenterology are probably not famous for being fun places to hang out, but if you have to for one reason or another - including this Whipple operation, which is one of the most complicated they do - I can certainly recommend the incredible team at Copenhagen's Rigshospital.

Recovery from a Whipple is an especially brutal process because the basic trick is to do it just as fast as humanly possible, getting back onto one's feet almost immediately, even if only to stand up. Other tricks include repeatedly saturating one's system with oxygen via special breathing exercises that have been shown to speed up the post-operative healing process...even though the last thing you instinctively want to do, when your midriff has been more or less sliced into two, is to breathe deeply. (Trust me on this!)

365 Days Ago Today - midriff complete with mid-rift!

Whipple patients typically lose 10% of their body weight in the pre- and post-operative period. It has taken an entire year to put even half of that back on! You might think that it every teenage schoolgirl's dream, but I am no teenage schoolgirl and I can tell you, nothing is stranger than finding that none of the things you ate before are going to help you put weight back on...and that instead you have to become a fat-chaser, a scavenger on the lookout for calories wherever you can find them.

I failed miserably, for at least the first three months. Putting butter on my bread, ignoring most vegetables as having insufficient protein for the amount of room they took up in my tummy, these sorts of changes seem simple - but they are not! I adore, sorry past tense, I adored, salads. But lettuce leaves and spinach leaves and suchlike are a thing of the past, once the part of the pancreas that produces enzymes is tossed into the surgical waste-bin. Because there's nothing to help digest them...which means basically that they get stuck, and it is excruciatingly painful as well as deeply frustrating.

The pancreas is of course where your insulin is manufactured too. The after-effects of Whipple surgery differ according to how much or how little of the pancreas is left by the surgeons, but in my case all I can say is, though incredibly lucky to be left with at least a bit of it, the process of eating say an orange or a banana seems to have been undermined forever. (Guess what my two absolute favorite fruits were? I guess one should never take ANYTHING for granted. I wonder how many bananas and oranges I scoffed over the years without ever really giving it a thought; whereas now, those two tastes are almost foreign to me, I can hardly remember either of them.)

Worries over dietary changes and internal rearrangements were pushed firmly onto the back burner the day, on the very point of leaving hospital and being declared a resounding success from a surgical point of view, I was told that seven months of chemotherapy was going to be needed too. Belt and suspenders. Pancreatic cancer is like the worst kind of serial killer, and no one was intending for me to take any chances.

So I had survived the disease. Now all I needed was to survive the cure!

As I say, I already wrote about what it's like, after the Whipple, to be prescribed follow-up chemotherapy for seven long months. That was at the mid-way point. Since my 189 days of chemo ended, my overall health seems from the outside enviable - and probably is, at least to almost everyone but me, who feels it has been disappointingly slow, unexpectedly erratic, and very little different from during chemo itself. Energy levels remain fluctuating rather than steady, sleep patterns likewise, and concentration is a word that seems almost to have tumbled out of my dictionary for good.

The ugly question naturally reared itself: if the Whipple surgery went so well (and it did, the surgeons were 100% adamant about that), why wasn't I by now back to Marathon form, both professionally and personally? And the answer will come shortly...courtesy of the bloodwork and the scanning techniques that Rigshospital once again is bringing to bear on this onetime athlete's body of mine. Cross your fingers; certainly I am crossing mine on this anniversary of anniversaries. One thing is sure: it isn't for want of trying - I have been trying once more to use running as my health barometer, and really have tried again and again and again to get back my running Mojo - just as, professionally, I have sought to regain my Cloud Mojo.

But it appears that convalescence is not only a question of mind over matter. Sometimes one needs "a little help from one's friends" - including, in this case, from Copenhagen University Hospital's brilliant oncologists - who understand the nuances of X-ray computed tomography!

Once they've advised me how best to proceed from here, I shall let you know (more succinctly next time, I promise!) how the future trajectory is looking. Hopefully the current little setback will be put into context and the overall prognosis will turn out to be simply Cloudtastic ;-)

Read the original blog entry...

More Stories By Jeremy Geelan

Jeremy Geelan is Chairman & CEO of the 21st Century Internet Group, Inc. and an Executive Academy Member of the International Academy of Digital Arts & Sciences. Formerly he was President & COO at Cloud Expo, Inc. and Conference Chair of the worldwide Cloud Expo series. He appears regularly at conferences and trade shows, speaking to technology audiences across six continents. You can follow him on twitter: @jg21.

Comments (0)

Share your thoughts on this story.

Add your comment
You must be signed in to add a comment. Sign-in | Register

In accordance with our Comment Policy, we encourage comments that are on topic, relevant and to-the-point. We will remove comments that include profanity, personal attacks, racial slurs, threats of violence, or other inappropriate material that violates our Terms and Conditions, and will block users who make repeated violations. We ask all readers to expect diversity of opinion and to treat one another with dignity and respect.


@CloudExpo Stories
PubNub on Wednesday released an open source template to allow developers to add Skype-like video chat into their apps. The free template provides a fully functional video chat platform using WebRTC, PubNub and Google Authentication for a global, reliable collaboration solution. “While the WebRTC protocol has created huge excitement as a way to deliver video chat ubiquitously, there’s still a gap between the protocol itself and the ability to deploy a working, globally scaled, collaboration appl...
The IoT Bootcamp is coming to Cloud Expo | @ThingsExpo on June 9-10 at the Javits Center in New York. Instructor. Registration is now available at http://iotbootcamp.sys-con.com/ Instructor Janakiram MSV previously taught the famously successful Multi-Cloud Bootcamp at Cloud Expo | @ThingsExpo in November in Santa Clara. Now he is expanding the focus to Janakiram is the founder and CTO of Get Cloud Ready Consulting, a niche Cloud Migration and Cloud Operations firm that recently got acquir...
Today, IT is not just a cost center. IT is an enabler and driver of business. With the emergence of the hybrid cloud paradigm, IT now has increasingly more capabilities to create new strategic opportunities for a business. Hybrid cloud allows an organization to utilize multi-tenant public clouds, dedicated private clouds, bare metal hosting, and the associated support and services for the right use cases through an on-demand, XaaS model. This model of IT creates tremendous opportunities for busi...
SYS-CON Events announced today that BroadSoft, the leading global provider of Unified Communications and Collaboration (UCC) services to operators worldwide, has been named “Gold Sponsor” of SYS-CON's WebRTC Summit, which will take place on June 9-11, 2015, at the Javits Center in New York City, NY. BroadSoft is the leading provider of software and services that enable mobile, fixed-line and cable service providers to offer Unified Communications over their Internet Protocol networks. The Compa...
SYS-CON Events announced today that GENBAND, a leading developer of real time communications software solutions, has been named “Silver Sponsor” of SYS-CON's WebRTC Summit, which will take place on June 9-11, 2015, at the Javits Center in New York City, NY. The GENBAND team will be on hand to demonstrate their newest product, Kandy. Kandy is a communications Platform-as-a-Service (PaaS) that enables companies to seamlessly integrate more human communications into their Web and mobile applicatio...
SOASTA, the leader in performance analytics, today reported record growth of the CloudTest community, exceeding 30,000 registered users of the CloudTest platform in Q1 2015. SOASTA also announced widespread adoption of its Web and mobile testing solutions, with more than 1,600 customers completing more than 285,000 tests using CloudTest during the quarter. This rapid growth shows that DevOps-driven digital businesses are embracing a more continuous approach to testing, and CloudTest is meeting t...
ProfitBricks has launched its new DevOps Central and REST API, along with support for three multi-cloud libraries and a Python SDK. This, combined with its already existing SOAP API and its new RESTful API, moves ProfitBricks into a position to better serve the DevOps community and provide the ability to automate cloud infrastructure in a multi-cloud world. Following this momentum, ProfitBricks has also introduced several libraries that enable developers to use their favorite language to code ...
While DevOps most critically and famously fosters collaboration, communication, and integration through cultural change, culture is more of an output than an input. In order to actively drive cultural evolution, organizations must make substantial organizational and process changes, and adopt new technologies, to encourage a DevOps culture. Moderated by Andi Mann, panelists will discuss how to balance these three pillars of DevOps, where to focus attention (and resources), where organizations m...
SYS-CON Events announced today that kintone has been named “Bronze Sponsor” of SYS-CON's 16th International Cloud Expo®, which will take place on June 9-11, 2015, at the Javits Center in New York City, NY, and the 17th International Cloud Expo®, which will take place on November 3–5, 2015, at the Santa Clara Convention Center in Santa Clara, CA. kintone promotes cloud-based workgroup productivity, transparency and profitability with a seamless collaboration space, build your own business applic...
SYS-CON Events announced today that Stratoscale, the new data center operating system, will exhibit at SYS-CON's 16th International Cloud Expo®, which will take place on June 9-11, 2015, at the Javits Center in New York City, NY. Based in Herzeliya, Israel, Stratoscale is redefining the data center, developing a hardware-agnostic, software platform hyper-converging compute, storage and networking across the rack or data center. The self-optimizing platform automatically distributes all physical...
of cloud, colocation, managed services and disaster recovery solutions, will exhibit at SYS-CON's 16th International Cloud Expo®, which will take place on June 9-11, 2015, at the Javits Center in New York City, NY. TierPoint, LLC, is a leading national provider of information technology and data center services, including cloud, colocation, disaster recovery and managed IT services, with corporate headquarters in St. Louis, MO. TierPoint was formed through the strategic combination of some of t...
How do you securely enable access to your applications in AWS without exposing any attack surfaces? The answer is usually very complicated because application environments morph over time in response to growing requirements from your employee base, your partners and your customers. In his session at 16th Cloud Expo, Haseeb Budhani, CEO and Co-founder of Soha, will share five common approaches that DevOps teams follow to secure access to applications deployed in AWS, Azure, etc., and the frict...
SYS-CON Events announced today that Soha will exhibit at SYS-CON's DevOps Summit New York, which will take place on June 9-11, 2015, at the Javits Center in New York City, NY. Soha delivers enterprise-grade application security, on any device, as agile as the cloud. This turnkey, cloud-based service enables customers to solve secure application access and delivery challenges that traditional or virtualized network solutions cannot solve because they are too expensive, inflexible and operational...
SYS-CON Events announced today that Vicom Computer Services, Inc., a provider of technology and service solutions, will exhibit at SYS-CON's 16th International Cloud Expo®, which will take place on June 9-11, 2015, at the Javits Center in New York City, NY. They are located at booth #427. Vicom Computer Services, Inc. is a progressive leader in the technology industry for over 30 years. Headquartered in the NY Metropolitan area. Vicom provides products and services based on today’s requirements...
SYS-CON Events announced today that Ciqada will exhibit at SYS-CON's @ThingsExpo, which will take place on June 9-11, 2015, at the Javits Center in New York City, NY. Ciqada™ makes it easy to connect your products to the Internet. By integrating key components - hardware, servers, dashboards, and mobile apps - into an easy-to-use, configurable system, your products can quickly and securely join the internet of things. With remote monitoring, control, and alert messaging capability, you will mee...
The 17th International Cloud Expo has announced that its Call for Papers is open. 17th International Cloud Expo, to be held November 3-5, 2015, at the Santa Clara Convention Center in Santa Clara, CA, brings together Cloud Computing, APM, APIs, Microservices, Security, Big Data, Internet of Things, DevOps and WebRTC to one location. With cloud computing driving a higher percentage of enterprise IT budgets every year, it becomes increasingly important to plant your flag in this fast-expanding bu...
What exactly is a cognitive application? In her session at 16th Cloud Expo, Ashley Hathaway, Product Manager at IBM Watson, will look at the services being offered by the IBM Watson Developer Cloud and what that means for developers and Big Data. She'll explore how IBM Watson and its partnerships will continue to grow and help define what it means to be a cognitive service, as well as take a look at the offerings on Bluemix. She will also check out how Watson and the Alchemy API team up to off...
With IoT exploding, massive data will transform businesses with opportunities to monetize almost anything that can be measured. In this C-Level Roundtable Discussion at @ThingsExpo, Brendan O’Brien, Aria Systems Co-founder and Chief Evangelist, will lead an expert panel of consultants, thought leaders and practitioners who will look at these new monetization trends, discuss the implications, and detail lessons learned from their collective experience. Finally, the panel will point the way forw...
SYS-CON Events announced today that Column Technologies, a global technology solutions company, will exhibit at SYS-CON's DevOps Summit 2015 New York, which will take place June 9-11, 2015, at the Javits Center in New York City, NY. Established in 1998, Column Technologies is a leader in application performance and infrastructure management for commercial and federal markets. The company is headquartered in the United States, with a diverse and talented team of more than 350 employees around th...
SYS-CON Events announced today that ProfitBricks, the provider of painless cloud infrastructure, will exhibit at SYS-CON's 16th International Cloud Expo®, which will take place on June 9-11, 2015, at the Javits Center in New York City, NY., and the 17th International Cloud Expo®, which will take place on November 3–5, 2015, at the Santa Clara Convention Center in Santa Clara, CA. ProfitBricks is the IaaS provider that offers a painless cloud experience for all IT users, with no learning curve. ...